The Parkinson’s Liferaft Podcast

The aim is to connect people who are interested in Parkinson’s via interviews from various different angles.

Listen on:

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Episodes

Thursday Jan 04, 2024

Nick Ephgrave has worked as a Local Adviser for Parkinson's UK for over 15 years.
What he doesn't know about the help you can get is not worth knowing!
Have a listen to his advice and knowledge.  Asnd he's funny.
 

Tuesday Jan 02, 2024

The Parkinson's UK Brain Bank is the world's only brain bank solely dedicated to Parkinson's research.
The Brain Bank, based at Imperial College London, collects precious tissue from people with and without Parkinson's who have decided to leave their brains to Parkinson's research.
The donation of brain tissue has already led to major advances in our understanding of Parkinson's, and resulted in new treatments being developed and tested.
People with and without Parkinson's can sign up and pledge to donate their brain for research. Donation is not an easy decision and we are extremely grateful to the donors and their families who have chosen to do this.
This is a recording of a talk which Prof David Dexter gave to the Kensington and Chelsea Parkinson's Support Group all about the Brain Bank.  He kindly allowed us to share it with you all. 

In the World of a Carer aka a PA

Wednesday Dec 20, 2023

Wednesday Dec 20, 2023

Nigel Craig and an anonymous lady both share their experiences as Carers to their loved ones who have Parkinson's.
These are open and honest feelings.  
And a new suggestion for replacing the word "Carer"!!
 

From DBS to Kilimanjaro!!!

Sunday Nov 05, 2023

Sunday Nov 05, 2023

Justin Fields was 26 when he got diagnosed with Parkinson's .... 12 years later, he has had DBS and climbed Kilimanjaro.  
This is a great listen!  You can also SEE it on YouTube  https://www.youtube.com/watch?v=3sgOBXhaCPk  

Sunday Sep 17, 2023

Blake Bookstaff lives in Tennessee, USA.  He's written a book about his experience of being diagnosed with Young Onset Parkinson's.  He is very positive and it is good to have someone from across the pond!

He Moved me and he Shook me!

Monday Aug 14, 2023

Monday Aug 14, 2023

Rory Cellan-Jones, of Movers and Shakers fame, chatted with me about his experiences with Parkinson's, his piano lessons and his rescue dog!
He's a very upbeat and lovely man ... I think you'll enjoy this:)  
 

Sunday Jul 23, 2023

STAY WITH ME ....  ha ha .....
Dr Olena Edwards is a Couples Therapist working in London.  
She has a lot of experience of working with couples where one of them has a life changing condition ….. eg:  Parkinson’s.
Dr Olena talks to me about how to open up a conversation with your partner about the emotional side of your relationship.  She has some great tips including how we can come to terms with the limitations that do eventually occur in a physical relationship.

Monday May 01, 2023

The Revd Tony Miles speaks about his experience with his father who had Parkinson's.  Tony is a lovely and most generous hearted person .... his father did a good job!  Tony also discusses how faith in God has not been for everyone in his family.   

Monday May 01, 2023

Jonathan Grundy has had Parkinson's for some years now and yet still manages to ride his bicycle all over London and volunteer for Research Trials.  He speaks French and Spanish and is a lighting expert ..... and here he is now to light up our podcast.

Sunday Apr 02, 2023

Will Cook, energetic CEO of Cure Parkinson's, tells us how he and his team are innovative and disruptive to give justified hope to curing Parkinson's.

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